News

Sep.06, 2010

2010 Summer Outings

In an effort to achieve the dreams of rare disease patients, our foundation has started to hold summer traveling activities since2004. Over the past years, our footsteps have spanned throughout Tai ...

May.24, 2010

Extraordinary measures DVD released

The DVD of “Extraordinary Measures”, the movie based on the true story of Dr. Chen Yuan-tsong’s research on the live-saving drug for Pompe diseases patients, was released i ...

May.20, 2010

7th IPWSO World Conference, 20 to 23 May 2010

Every three years International Prader-Willi Syndrome Organization (IPWSO), in conjunction with a host country, holds an international PWS conference. T his year, the international conf ...

May.01, 2010

Power Subsidy Program Launched

Power Subsidy Program for the Home-care Ventilator-dependent Patients Launchedon May1, 2010. After raising the power rate twice, the Taiwan Power Company adopted an accumulativepricing sch ...

Mar.06, 2010

Press Conference of Physical Therapy DVD

Press Conference to Announce Release of Simple Guides to Rare Disease Physical Therapy DVD Occurring in extremely low frequencies, rare diseases are very diverse and complicated. So far ...

Nov.28, 2009

7th Scholarship Award Ceremony

The Power of Love- 7th Annual Rare Disorder Scholarship Report This year the7th Annual Rare Disorder Scholarship Ceremony which took place on November28reveals the recipients’ tro ...