News

Jun.21, 2011

The Book Launch Party: Courage of 120 cm

When Chen Youhua was five months old, her mother noticed Chen was unable to sit with her flabby body. Soon after, Chen was diagnosed with Achondroplasia, a rare disease caused by genetic mutati ...

Apr.19, 2011

Amend Regulations for Rare Diseases

The Government amended “Regulations Governing Subsidies for Medical and Healthcare Expenses for Rare Diseases”(罕見疾病醫療照護費用補助辦法) focuses on enhancing the diagnosis an ...

Apr.01, 2011

Cross-Strait Medical Protection and Policy Meeting

The First Cross-Strait Medical Protection and Policy of Rare Diseases Exchange Meeting To promote the development of cross-strait policies on rare diseases, the establishment of medical ne ...

Mar.25, 2011

RD Kids Paintings Brighten up McDonald House

Rare Disease Kids Paintings Brighten up Ronald McDonald House Paintings made by rare disease children have brightened up Ronald McDonald House accommodations aimed at providing emotional ...

Dec.22, 2010

Fubon Taipei Marathon Donates NT$1.1 Million

Fubon Life Insurance Co., a long-term supporter of rare disease patients, has continued to fund the Taiwan Foundation for Rare Disorders (TFRD) through the Fubon Taipei Marathon by dona ...

Dec.18, 2010

Cathay Pacific Celebrate Christmas with Children

On December18, Cathay Pacific, the Children Are Us Foundation and the children’s show hosts from the MOMO family, brought Christmas Gingerbread House to celebrate Christmas with ...