News

Nov.03, 2015

Teachers Study Manual for Rare Diseases

"Teachers Study Manual for Rare Diseases" Teachers Are Welcome to Request After ten years’ experience in advocating, TFRD found that rare disease education not only depen ...

Nov.02, 2015

Janine Chang Invites You to Replace Prejudice

Actress Janine Chang Invites You to Replace Prejudice with Love to Accept Children with Rare Diseases The actress Janine Chang, widely popular on three sides across the Taiwan Strait ...

Sep.21, 2015

First Picture Book Creation by Peijing Liu – Born

‘When I open the paper and draw out my own story, blisters and bloodstains suddenly turn into beautiful colors. Then I know, there is something more than pain in my life.’ Dream is B ...

May.12, 2015

Modeling Creativity Contest On Mother's Day

More than80% of rare disease patients were taken care by mothers alone, therefore; to bring an unforgettable Mother’s Day for mothers, Sun Xi-Jun Sun, CEO of Canbran International I ...

Apr.28, 2015

Social Activities for HoFH

With everyone’s expectation, the first social activities for Homozygous Familial Hypercholesterolemia was finally held in April. Although the current patients were few in number, there are ...

Mar.25, 2015

Asia Rare Disease Conference in Singapore

The Asia Rare Disease Conference hosted by Rainbow Across Borders (RAB) took place in Singapore on March12-13, 2015. There were25rare disease groups and273specialists and patients from13 ...