Transforming Rare Lives-International Conference


Prevention of Rare Disease and Orphan Drug Act has taken effect since 2000 and for years it has fostered rare disease prevention and orphan drug distribution. On the occasion of the Act in effect for almost two decades, we organize the international conference in hopes of looking back at the path taken by TFRD from medical developments of rare disease to patient group advocacy and the role of publicity. By international exchanges, we also wish to learn from other countries’ innovative care of rare disease patients and look forward to a bright future.

"Transforming Rare Lives-International Conference of 20-Year Retrospect and Prospect on Rare Disease in Taiwan" has been held on 20th October 2019 at Chang Yung-Fa Foundation International Convention Center. It has gathered experts and scholars of the rare disease community from the US, Canada, Australia, Korea, Vietnam, Malaysia, Thailand, Taiwan to share valuable experience. There are two themes, one is about medical therapy and the other is about patient group advocacy experience.

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