TFRD's mission is to improve the life of rare disease patients. We carry out our mission by assisting rare disease patients to receive proper medical treatment and rehabilitation, securing orphan drugs and special nutrients and fulfilling the needs of rare diseases patients in terms of education, employment and long-term care.

As a representative for rare disease patients in Taiwan, TFRD advocates the adoption of relevant legislation that ensures rare disease patients’rights, encourages rare disease research, and raises public rare disease awareness.


 Care & home-visit of patients & families
 Promoting research and development on rare diseases
 Incubate of patient groups
 Cooperate with clinical geneticist
 Enhance international network of rare disease organizations
 Promote rare diseases awareness
 Urge government to make policies
 Cooperate with medical institutions

TFRD Model from Advocacy to Service