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Aiming to secure the fund for orphan drugs by National Health Insurance (NHI), after TFRD had lobbied legislators on various occasions, Legislator Liu Chien-kuo, along with Legislators ...
The "North District Rare Disease Volunteer Recruitment Training" held on March17attracted over30new volunteers from diverse backgrounds and various age groups. After getting to kno ...
Given the scarcity of rare disease patients and the complexity of their conditions, finding help when faced with problems can be challenging. This makes it even more crucial for them to interact and ...
Over the past20years, Taiwan has become a global leader in rare disease care and human rights advocacy, as well as a model for countries around the world to promote rare disease policies. However, ...
The Rare Disease Welfare Center was established in October2022with the " Administrative Service Office for Patients in Taoyuan, Hsinchu, and Miaoli ". The Taoyuan Hospital of ...
Due to their physical limitations, individuals with rare diseases may face unfriendly environments and a lack of learning resources when attending school. Securing job opportunities in the workplace ...
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