News

Aug.02, 2023

Give Likes to Dads

Families caring for children with rare diseases face a challenging journey that requires long-term commitment. To recognize and support these families, on August 2, TFRD organized a celebration ...

Jul.24, 2023

Bathing Experience At RD Welfare Center

When the Rare Disease Welfare Center was initially conceived, two welfare centers were designed to offer bathing services catering to the special bathing needs of patients. Commencing this year, ...

Jul.08, 2023

National Palace Museum & ACP

By making advance medical decisions, people could decide beforehand what kind of medical treatment they want or don't want at the terminal of their lives, allowing them to have the right to a dig ...

Jun.28, 2023

Groups Searching for Leisurely Living

In addition to the deterioration of physical functioning, patients with rare diseases may also experience changes in their psychological state. For the first time, TFRD combined a physical fitne ...

Apr.20, 2023

Gift Bags by Rare Craftsmen

EXCELsior, which has long been involved in the research and development of orphan drugs, collaborated with TFRD to launch a gift bag made of canvas in April this year. The unique gift box f ...

Apr.17, 2023

Delegation of the Legislative Yuan Comes!

Since its founding in 1999, TFRD has considered itself as a third department outside of the government capable of pooling resources with the power of the private sector to help RD patients be t ...