News

May.12, 2025

Mothers With RD Kids Honored For Their Dedication

In families affected by rare diseases, mothers typically shoulder the primary caregiving role—a responsibility made exponentially more demanding by the medical complexities of these conditions. ...

Apr.28, 2025

The 3rd Osmanthus Concert and RD Family Day

Thanks to the dedication of Prof. Tseng Min-Chieh—co-founder of TFRD and a professor at National Taipei University’s (NTPU) Department of Social Work—the renowned ...

Apr.20, 2025

Translation Club Gives Tour at RD Welfare Center

From March to June in2025, members of the translation club gathered together on weekends intensively to rewrite and record picture books of rare disease in reader’s theater format. Between r ...

Apr.20, 2025

TFRD Welcomes 5 Volunteers from the Netherlands

When Suzy, Fieke, Elisa, Ise, and Puck found out from the English website of TFRD, the Taiwan Foundation of Rare Disorders, about services provided by the Foundation to RD patients i ...

Apr.01, 2025

Therapeutic Yoga: Healing Body, Mind, and Spirit

TFRD Kaohsiung Branch hosted a “Therapeutic Yoga Experience” workshop aimed at enhancing caregivers’ physical well-being and alleviating strain caused by prolonged fatigue. ...

Mar.24, 2025

Specialized Symposium for Genetic Physicians on RD

In the decision-making process of whether to include orphan drugs in the national health insurance (NHI) system, the roles of doctors, medical experts, and patient advocacy groups are all crucial. ...