News

Mar.17, 2025

Dining Together: Gardening for Stress Relief

Amid the fast-paced life of the city, people often struggle to find time to relax. On March15, the Taiwan Foundation for Rare Disorders (TFRD) offered a peaceful escape by inviting families ...

Mar.14, 2025

Press Conference: Patient Survey & RD Database

｜Press Conference｜ Results Presentation for the "Survey on the Current Situation of Rare-Disease Families" and "Disease-Database Utilization" ｜Date and Time｜ Fr ...

Feb.24, 2025

Elementary School Transition Discussion Meeting

The lifestyle of elementary school is completely different from that of kindergarten. When children begin to take on more responsibilities and follow rules, coupled with the unique nature of rare di ...

Feb.16, 2025

Special Gathering For Niemann-Pick Disease Group

Established in2006, the Niemann-Pick Disease Support Group is about to enter its19th year. On Saturday, February15th, the group held a special gathering to show its support for patients and t ...

Feb.10, 2025

Kid Journalist Camp

As Rare Disease Day approaches, TFRD teamed up with The Reporter for Kids to hold a two-day “Interviewing Classmates with Rare Diseases – Kid Journalist Camp” on F ...

Dec.30, 2024

25th Anniversary Concert: Feel The Power of Life

TFRD celebrated its25th anniversary with a concert on the evening of December29. The event, titled " Heavenly Melody Chorus: Rare Harmony, Joyful Resonance, " was held at the C ...