News

May.23, 2024

Nestlé Taiwan’s Nutritional Support

Nearly half of all rare disorder patients who rely on enteral nutrition do so because of conditions that affect brain development or neurological function. Others—including those with severe h ...

May.20, 2024

Cross-Disease Patient Fellowship Event

Our organization and the Taiwan Organization For Disadvantaged Patients held the "2024Cross-Disease Experience Day Fellowship Event for Rare and Disadvantaged Patients" at the ...

May.20, 2024

VHL Fellowship Event Successfully Concluded

The first fellowship event specifically for von Hippel-Lindau (VHL) syndrome patients was held on May19th at the Taipei Bioinnovation Park, with eight VHL patient families and a total of ...

May.07, 2024

Relaxing Via Sound Therapy With Singing Bowl

On May5, TFRD's Kaohsiung Branch held the "2nd Singing Bowl Sound Therapy Workshop" in the Tainan Cultural and Creative Park, with the aim of providing everyone with an ...

May.06, 2024

Osmanthus Concert / Mother's Day Recognition

To carry on the tradition of last year's Osmanthus Concert and to show our gratitude to the500Osmanthus VIPs who helped the Rare Disease Welfare Center (RDWC) at its inception, TF ...

Apr.17, 2024

A Trip for Caregivers to Relax

On April13and14, TFRD held its first "Caregiver Spiritual Growth Camp" at the Rare Disease Welfare Center (RDWC). Everyone packed their backpacks and gathered at RDWC ...