News

Apr.20, 2025

Translation Club Gives Tour at RD Welfare Center

From March to June in2025, members of the translation club gathered together on weekends intensively to rewrite and record picture books of rare disease in reader’s theater format. Between r ...

Apr.20, 2025

TFRD Welcomes 5 Volunteers from the Netherlands

When Suzy, Fieke, Elisa, Ise, and Puck found out from the English website of TFRD, the Taiwan Foundation of Rare Disorders, about services provided by the Foundation to RD patients i ...

Apr.01, 2025

Therapeutic Yoga: Healing Body, Mind, and Spirit

TFRD Kaohsiung Branch hosted a “Therapeutic Yoga Experience” workshop aimed at enhancing caregivers’ physical well-being and alleviating strain caused by prolonged fatigue. ...

Mar.24, 2025

Youth Camp: Tree Climbing & Paintball Adventure

The Youth Adventure Camp took place from March22nd to23rd at the Wangyou Grassland Holy Love Campground in Xinshe, Taichung, where38rare disease youth and their siblings participated in tr ...

Mar.24, 2025

Life Education Instructor Training Program

To support existing life education instructors in enhancing their professional knowledge and skills, and to cultivate potential patients and family members to become instructors, TFRD Taichung B ...

Mar.24, 2025

Specialized Symposium for Genetic Physicians on RD

In the decision-making process of whether to include orphan drugs in the national health insurance (NHI) system, the roles of doctors, medical experts, and patient advocacy groups are all crucial. ...