Mothers With RD Kids Honored For Their Dedication

In families affected by rare diseases, mothers typically shoulder the primary caregiving role—a responsibility made exponentially more demanding by the medical complexities of these conditions. Yet despite these tremendous challenges, countless rare disease mothers demonstrate unwavering dedication to their children. This May, in honor of Mother's Day, municipal governments and organizations across Taiwan hosted special recognition ceremonies to celebrate these remarkable women. These events not only acknowledged maternal sacrifices but also aimed to raise public awareness about the resilience and compassion of caregivers in the rare disease community.

Rare Disease Welfare Center (RDWC) Honors Model Mothers
TFRD invited 10 mothers of children with rare diseases from across Taiwan to the Rare Disease Welfare Center (RDWC). In addition to providing them with a much-needed respite from their daily challenges, the event publicly recognized model mothers of children with rare diseases, including single mothers, foreign spouses, and mothers who are themselves patients with rare diseases. The event expressed gratitude for their long-term selfless contributions, which deserve the respect and gratitude of society.

Hsinchu City Celebrates Diverse Expressions of Motherhood
The Hsinchu City Government's Model Mother Commendation Ceremony expanded its eligibility criteria to accommodate the diverse roles of mothers in the new era. Grandmothers, aunts, foster families, and placement institutions are now also eligible to receive awards.

Hardworking Mothers' Compassionate Award Of Taichung City
Established over four decades ago, the Taichung City Love Children Charity Association launched the Hardworking Mothers' Compassionate Award in recognition of the unpaid and often overlooked efforts of female caregivers. Throughout the years, many families from the Taiwan Foundation for Rare Disorders (TFRD) have been among the honored recipients. Now in its 27th year, the award continues to celebrate the unwavering dedication of these women. This year, TFRD is proud to announce that one of its parents has once again been recognized with this prestigious award.

Kaohsiung City Commends Resplendent Mothers
In recognition of the invaluable contributions of mothers to both their families and society, the City of Kaohsiung has established seven distinct honors celebrating maternal strength and resilience. Among them are the "Persevering Mothers" award, given to those who have demonstrated unwavering commitment to public service; the "New Power Mothers" award, honoring immigrant mothers actively engaged in civic life; and the "Self-reliant Mothers" award, which acknowledges women who maintain optimism and initiative in the face of adversity. We extend our heartfelt congratulations to this year’s inspiring award recipients—mothers who courageously navigate life with rare diseases.

Translator: David Lee (Becker Muscular Dystrophy)