Rare Daddy Band

While their children were singing in the chorus or painting in the drawing class, fathers of children with rare diseases (Rare daddies) often stood at the back of the classroom or went downstairs to smoke a cigarette alone. Sometimes they would drop their children off and leave immediately, returning only at the end of the class. In Chinese families, fathers typically avoid showing their emotions. Faced with huge medical expenses and the resulting pressure, Rare daddies often choose to bear the burden silently. Little is known about the fact that beneath their seemingly strong exterior, they are vulnerable and have no outlet for their frustrations.

In 2007, a man known as Daddy Wu, whose kid was diagnosed with Niemann-Pick, invited a few other Rare daddies to join him for coffee, or a small drink with some peanuts. This casual meeting fostered open, buddy-like conversations about their thoughts and experiences. As participation grew, the group decided to diversify their activities, organizing hiking trips and forming a softball team. Eventually, these efforts culminated in the creation of the "Rare Daddy Band."

The "Rare Daddy Band" aims to inspire families affected by rare diseases to embrace a more positive outlook on their mission and responsibilities through their joyful songs and humorous approach. Meanwhile, the TFRD expects the band to become opinion leaders within various disease groups, playing a crucial role in the operation of different patient organizations. Beyond aiding their own children, TFRD hopes they will also support other families' children, fostering a community of mutual assistance.

With their love and rock 'n' roll energy, Rare daddies have traveled around the island to perform. Their passionate performances can be seen at major events organized by the TFRD, Rotary Clubs, and Lions Clubs, as well as at year-end dinners hosted by various enterprises. They were even invited to throw the ceremonial first pitch by the Chinese Professional Baseball League (CPBL) and to sing in front of the Presidential Office Building.

In addition to their hit song Rock Me To The Moon, which won the "Best Movie Song" award at the 50th Golden Horse Awards in 2013, Rare Daddy Band was featured in the local humanistic documentary series "Home Run Taiwan." In 2016, they participated in the documentary "You Are My Flower," which highlights the real lives of families affected by rare diseases. The film beautifully captures their sincere moments as they support each other through practice and performance. Today, the Rare Daddy Band celebrates its 17th anniversary. The members continue to stand by their families and friends with unwavering dedication and strength.