Rare Disease Day

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.

Rare Disease International (RDI)

RDI’s  mission is to be a strong common voice for people living with a rare disease around the world.

Asia Pacific Alliance of Rare Disease Organisation

Asia Pacific Alliance of Rare Disease Organisation mission is to help member organizations improve treatment outcomes for those affected by the rare disease.

National Organization for Rare Disorders

NORD is a spontaneous health organization dedicated to helping people with rare diseases and assisting other organizations to help them.

Eurordis-European Organization for Rare Diseases

EURORDIS seeks to improve the quality of life of people living with rare diseases in Europe through advocacy at the European level.

Canadian Organization for Rare Disorders (CORD)

CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.

New Zealand Organisation for Rare Disorders(NZORD)

NZORD mission is to amplify the collective voice to improve healthcare and wellbeing for people and their whānau living with a rare disorder.

Korean Organization of Rare Diseases (KORD)

 KORD was established in 2001 with the purpose of promoting the rights of patients with rare diseases.


ASrid is committed to providing the valuable service/system for "connecting" and "creating" with/among patients.

Rare Disease Hong Kong

Its objectives are to spearhead and improve related policies and services, promote public education on rare diseases, and strengthen the community’s support for patients.