MRDS is a voluntary organization set-up to represent and look out for the welfare of individuals including their families that are affected by rare disorders.

Rare Disorders Society Singapore established in 2011, it aims to raise awareness on various life-threatening rare diseases.

The Illness Challenge Foundation Vision is  to create an equal and respectful social environment for the community challenged by illness.

Chinese Organization for Rare Disorders  played an important role in policy advocacy and social engagement on rare diseases.

The  aim of the organisation is to  engage in advocacy，energize awareness and empower patient support organistions .

Philippine Society for Orphan Disorders mission is to uphold the primary concerns and welfare of individuals with rare disorders.

Genetic Alliance  is a leader in deploying high tech and high touch programs for individuals, families, and communities to transform health systems by being responsive to the real needs of people in their quest for health.

March of Dimes Birth Defect Foundation support research, lead programs and provide education and advocacy so that every family can have the best possible start.

Is a mutual aid and self-help group for patients and their families , the aim is to provide mutual support and encouragement to patients and their familiest.

The MMS is a volunteer non-profit organization whose mission is to empower families and general public with knowledge in inborn errors of metabolism.