News

Feb.10, 2025

Kid Journalist Camp

As Rare Disease Day approaches, TFRD teamed up with The Reporter for Kids to hold a two-day “Interviewing Classmates with Rare Diseases – Kid Journalist Camp” on F ...

Dec.30, 2024

25th Anniversary Concert: Feel The Power of Life

TFRD celebrated its25th anniversary with a concert on the evening of December29. The event, titled " Heavenly Melody Chorus: Rare Harmony, Joyful Resonance, " was held at the C ...

Dec.16, 2024

Public Hearing On Orphan Drugs Budget

Aiming to secure the fund for orphan drugs by National Health Insurance (NHI), after TFRD had lobbied legislators on various occasions, Legislator Liu Chien-kuo, along with Legislators ...

Dec.09, 2024

Networking Event For Patients With RSS

Patients with Russell-Silver Syndrome (RSS) are smaller in stature and prone to conditions such as uneven legs, feeding difficulties and heart defects, but they are no less ambitious. A total ...

Dec.09, 2024

Heartwarming Trip for Volunteers (Taichung Branch)

On a December weekend, TFRD Taichung Branch organized an excursion to the Guanshan Pastoral Area of Qingjing Farm, leading a group of dedicated volunteers through winding mountain roads t ...

Dec.02, 2024

Mindful Compassion: An Infinite Power

Service providers working in the field of rare diseases are often on the front lines, offering crucial support to affected families. Yet, the demands of long hours and heavy workloads can take a tol ...