News

Jun.24, 2024

2024 Northern Region Summer Volunteer Day

The2024Northern Region Summer Volunteer Day brought together eight committed volunteers and our team for a meaningful day of sharing and connection. It was a great opportunity to reflect on our ...

Jun.04, 2024

Celebrating the 25th Birthday

"Mom, can I go to the amusement park…?" For many kids, it’s a simple question. But for families affected by rare disorders, everyday joys like this can be difficult to exper ...

May.25, 2024

First Visit from Grown-up with Hands Family

On May25, we had the pleasure of welcoming the Grown-up with Hands Family, part of the Shiguang Educational Institute in Zhudong. This marked the first collaboration between our two centers& ...

May.23, 2024

Nestlé Taiwan’s Nutritional Support

Nearly half of all rare disorder patients who rely on enteral nutrition do so because of conditions that affect brain development or neurological function. Others—including those with severe h ...

May.20, 2024

Cross-Disease Patient Fellowship Event

Our organization and the Taiwan Organization For Disadvantaged Patients held the "2024Cross-Disease Experience Day Fellowship Event for Rare and Disadvantaged Patients" at the ...

May.20, 2024

VHL Fellowship Event Successfully Concluded

The first fellowship event specifically for von Hippel-Lindau (VHL) syndrome patients was held on May19th at the Taipei Bioinnovation Park, with eight VHL patient families and a total of ...