News

Feb.20, 2019

2019 Rare Disease Day Show You Care！

The Taiwan Foundation for Rare Disorders (TFRD) is encouraging the general public to use their creativity through a series of events to help raise the profile of the RareDisease Day. The ...

Dec.18, 2018

The Southern Volunteer Team Wins Award Again

Volunteer service team of TFRD southern office was rewarded the High Distinction Award of hygienic health care volunteer service in Kaohsiung in2018. It was their fifth time awarded this hon ...

Dec.05, 2018

44th Social Education Contribution Award

【Awards】TFRD Receives44th Social Education Contribution Award “Don’t ignore them because of their rarity. Rare disease patients bear the consequences of the inevitable risks ...

Nov.26, 2018

Congratulation! TFRD Gets the Yuen-Shu Award

TFRD Has Been Awarded the Yuen-Shu Award Among Non-indigenous Groups Taiwan Foundation for Rare Disorders (TFRD) has continuously served for aborigines for many years. The founda ...

Nov.02, 2018

Opening Press Conference of Taiwan Dravet

Opening Press Conference of Taiwan Dravet Association Parents of Dravet Syndrome patients have been working on solving their children’s problems indrug use, medication and finding medic ...

Oct.15, 2018

Wen-Han You's Trip Around Japan by A Basket Bike

A new book launch for A Week in Japan, written by Wen-Han You, a patient with VHL (Von Hippel-Lindau), was held on October14at Kinokuniya Bookstore of Breeze Center Taipei. You&rsq ...