News

Jul.17, 2023

Little King Kong Soccer Team

We express our gratitude to PX Mart's "Small Change Love Donation," enabling TFRD to organize diverse sports camps annually and establish various teams such as the Rare Lit ...

Jul.15, 2023

A Social Event For Retinoblastoma Patients

A social event for retinoblastoma patients took place on July15at the Rare Disease Welfare Center, with a total of21patients and their families in attendance. Initially, the center staff introd ...

Jul.15, 2023

A Social Event For Individuals With CCHS

This year, TFRD, in collaboration with the Department of Medical Genetics at NTU, hosted a social event for individuals with CCHS (Congenital Central Hypoventilation Syndrome) on J ...

Jul.08, 2023

Rare Talent Classes are on the Road !

The first session of the Rare Disease Welfare Center's talent classes has started since March2023, with a total of eight classes. This is also the first regular program at Center, which al ...

Jul.08, 2023

National Palace Museum & ACP

By making advance medical decisions, people could decide beforehand what kind of medical treatment they want or don't want at the terminal of their lives, allowing them to have the right to a dig ...

Jul.02, 2023

RD Workshop for Medical Students

Rare diseases occur quite sparsely, but they cover a wide range of symptoms and can take some time to be diagnosed. Most professionals only learn about rare diseases from textbooks and may never hav ...