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TFRD organized the2024Training Course for Direct Service Staff of Rare Disease Patient Groups on February16, February23and March8. Besides TFRD's direct service social workers ...
To celebrate the25th anniversary of TFRD and the Rare Disease Day, observed annually on28February (or29in leap years), we held a Rare Disease Day Party at Rare Disease Welfare Center ...
This winter break, TFRD cooperated with Philharmonic Radio Taipei for the first time to hold the “1st Rare Disorder Broadcasting Camp”. From January31to February3, four sess ...
Most rare disorders have a slow progression and lack proactive treatment options. Due to the impact on multiple bodily systems, patients often require long-term rehabilitation. On February3, the S ...
With the Chinese New Year approaching, the United Microelectronics Corporation (UMC) Candlelight Club held a warm charitable bazaar during Spring Festival from January22nd to26th at Th ...
Given the scarcity of rare disease patients and the complexity of their conditions, finding help when faced with problems can be challenging. This makes it even more crucial for them to interact and ...
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