News

Nov.26, 2018

Congratulation! TFRD Gets the Yuen-Shu Award

TFRD Has Been Awarded the Yuen-Shu Award Among Non-indigenous Groups Taiwan Foundation for Rare Disorders (TFRD) has continuously served for aborigines for many years. The founda ...

Nov.02, 2018

Opening Press Conference of Taiwan Dravet

Opening Press Conference of Taiwan Dravet Association Parents of Dravet Syndrome patients have been working on solving their children’s problems indrug use, medication and finding medic ...

Oct.15, 2018

Wen-Han You's Trip Around Japan by A Basket Bike

A new book launch for A Week in Japan, written by Wen-Han You, a patient with VHL (Von Hippel-Lindau), was held on October14at Kinokuniya Bookstore of Breeze Center Taipei. You&rsq ...

Jul.06, 2018

2018 President Educational Award

President Educational Award was set to encourage students to face the adversity and bring their positive sides of humanity into play. The students with rare diseases who have suffered from various ...

Apr.27, 2018

To Diagnose RD by AI Technology is Within Reach

【New Knowledge】To Diagnose RD by AI Technology is Within Reach You may have heard the Artificial Intelligence (AI) could be applied to take care of the elders, to help the children l ...

Mar.28, 2018

A Song Collection Written by Patients is Online

【Member Creations】A Special Collection of Songs Written by Rare Disease Patients Officially Available Online at KKBOX and iTunes Store! Patients who are afflicted with rare dise ...