News

Aug.02, 2023

Give Likes to Dads

Families caring for children with rare diseases face a challenging journey that requires long-term commitment. To recognize and support these families, on August2, TFRD organized a celebration ...

Jul.26, 2023

RD Patients Better Their Skills for Jobs

In the past, numerous remarkable patients have garnered recognition and employment opportunities through charity booths, charity sales, and talent talks. To encourage patients and their family membe ...

Jul.24, 2023

Bathing Experience At RD Welfare Center

When the Rare Disease Welfare Center was initially conceived, two welfare centers were designed to offer bathing services catering to the special bathing needs of patients. Commencing this year, ...

Jul.17, 2023

Little King Kong Soccer Team

We express our gratitude to PX Mart's "Small Change Love Donation," enabling TFRD to organize diverse sports camps annually and establish various teams such as the Rare Lit ...

Jul.15, 2023

A Social Event For Retinoblastoma Patients

A social event for retinoblastoma patients took place on July15at the Rare Disease Welfare Center, with a total of21patients and their families in attendance. Initially, the center staff introd ...

Jul.15, 2023

A Social Event For Individuals With CCHS

This year, TFRD, in collaboration with the Department of Medical Genetics at NTU, hosted a social event for individuals with CCHS (Congenital Central Hypoventilation Syndrome) on J ...