News

Jul.18, 2017

Documentaries －Co-creation Project

Documentaries From a Phone Call－Providence University, Department of Mass Communication-Documentary Co-creation Project Six documentaries of rare patients’ life were published, sho ...

Nov.12, 2016

Latest Statement: TFRD Fails to Attend UN Meeting

Latest statement: TFRD fails to attend UN meeting due to CCP’s protest Originally, NGO Committee for Rare Diseases specially invited Prof Min-Chieh Tseng, the co-founder of ...

Sep.06, 2016

500 Osmanthus Trees Waiting for Your Adoption

500Osmanthus trees waiting for your adoption to support fundraising of Taiwan Foundation for Rare Disorder (TFRD) is planning to set up the rare disease welfare homeland, a disabled service c ...

Aug.05, 2016

"Rock Me To the Moon" on National Geographi

The Movie “Rock Me To the Moon” Broadcast on National Geographic Channel The movie “Rock Me To the Moon”, which describes an enthusiastic band composed of six fa ...

Feb.03, 2016

Taiwan Pompe Association Officially Established

Taiwan Pompe Association Officially Established After a Long Wait Since the establishment of the Pompe Disease patients’ union in2012, patients' families have always hoped that an ...

Nov.03, 2015

Teachers Study Manual for Rare Diseases

"Teachers Study Manual for Rare Diseases" Teachers Are Welcome to Request After ten years’ experience in advocating, TFRD found that rare disease education not only depen ...