News

Dec.29, 2023

Taichung Volunteers Received Honor

The Taichung office offers various activities and service programs for patients with rare diseases, relying on the support and assistance of volunteers. Currently, the Taichung Volunteer Team co ...

Dec.27, 2023

Visit to the Rare Disease Home

On December27, over200students from the Affiliated Senior High School of National Chengchi University visited the Rare Disease Home for a journey to broaden their horizons. The purpose of ...

Nov.14, 2023

Taiwan Roundtable oF APARDO

In2019, the Asia Pacific Alliance of Rare Disease Organisations (APARDO) held its annual summit in Taiwan for the first time. This year (2023), with lockdowns lifted in several regions, ...

Nov.13, 2023

First White Paper on Rare Diseases

Over the past20years, Taiwan has become a global leader in rare disease care and human rights advocacy, as well as a model for countries around the world to promote rare disease policies. However, ...

Sep.09, 2023

Partnering with Taoyuan Hospital

The Rare Disease Welfare Center was established in October2022with the " Administrative Service Office for Patients in Taoyuan, Hsinchu, and Miaoli ". The Taoyuan Hospital of ...

Aug.25, 2023

RD Youth Vocational Experience Camp

Due to their physical limitations, individuals with rare diseases may face unfriendly environments and a lack of learning resources when attending school. Securing job opportunities in the workplace ...