News

Jul.02, 2023

Horticultural Stress Relief Activity

On a hot summer day, the Rare Disease Welfare Center hosted an experience activity of stress relief through horticultural therapy that was full of vitality and healing, with the attendance of30me ...

Jul.02, 2023

CMT Group Meet-up

TFRD has been organizing several social events for patients with Charcot-Marie-Tooth Disease (CMT) since2008. This year, TFRD held its9th CMT patient social event on July2 at the R ...

Jun.28, 2023

Groups Searching for Leisurely Living

In addition to the deterioration of physical functioning, patients with rare diseases may also experience changes in their psychological state. For the first time, TFRD combined a physical fitne ...

Jun.28, 2023

Mind Theater

This time, Wei Da-Hong, a counselor from Li Ren Psychological Clinic, was invited by TFRD’s Mind Theater, along with two trainee counselors, to watch the movie " Starfish &qu ...

Jun.15, 2023

CMUH Donated Supplies

Last year, China Medical University Hospital (CMUH) not only donated charity materials, but also initiated a rare disease art exhibition for the public to see the extraordinary vitality of pa ...

Jun.05, 2023

Two-Day Tour for New Members

Rare diseases are diverse and rare, with many new members of the Firefly Family joining TFRD every year. Starting from2021, TFRD has organized "Two-Day Tour for New Members" ...