News

Aug.05, 2016

"Rock Me To the Moon" on National Geographi

The Movie “Rock Me To the Moon” Broadcast on National Geographic Channel The movie “Rock Me To the Moon”, which describes an enthusiastic band composed of six fa ...

Feb.03, 2016

Taiwan Pompe Association Officially Established

Taiwan Pompe Association Officially Established After a Long Wait Since the establishment of the Pompe Disease patients’ union in2012, patients' families have always hoped that an ...

Nov.03, 2015

Teachers Study Manual for Rare Diseases

"Teachers Study Manual for Rare Diseases" Teachers Are Welcome to Request After ten years’ experience in advocating, TFRD found that rare disease education not only depen ...

Nov.02, 2015

Janine Chang Invites You to Replace Prejudice

Actress Janine Chang Invites You to Replace Prejudice with Love to Accept Children with Rare Diseases The actress Janine Chang, widely popular on three sides across the Taiwan Strait ...

Sep.21, 2015

First Picture Book Creation by Peijing Liu – Born

‘When I open the paper and draw out my own story, blisters and bloodstains suddenly turn into beautiful colors. Then I know, there is something more than pain in my life.’ Dream is B ...

Dec.30, 2014

RDODA Passed on the Third Reading

To take care of more rare disease patients, the Legislative Yuan passed the Amendment of the Rare Disease and Orphan Drug Act (RDODA) on its third reading on December30, 2014, with a vi ...