News

Nov.14, 2023

Taiwan Roundtable oF APARDO

In2019, the Asia Pacific Alliance of Rare Disease Organisations (APARDO) held its annual summit in Taiwan for the first time. This year (2023), with lockdowns lifted in several regions, ...

Nov.13, 2023

First White Paper on Rare Diseases

Over the past20years, Taiwan has become a global leader in rare disease care and human rights advocacy, as well as a model for countries around the world to promote rare disease policies. However, ...

Sep.09, 2023

Partnering with Taoyuan Hospital

The Rare Disease Welfare Center was established in October2022with the " Administrative Service Office for Patients in Taoyuan, Hsinchu, and Miaoli ". The Taoyuan Hospital of ...

Aug.25, 2023

RD Youth Vocational Experience Camp

Due to their physical limitations, individuals with rare diseases may face unfriendly environments and a lack of learning resources when attending school. Securing job opportunities in the workplace ...

Aug.02, 2023

Give Likes to Dads

Families caring for children with rare diseases face a challenging journey that requires long-term commitment. To recognize and support these families, on August2, TFRD organized a celebration ...

Jul.26, 2023

RD Patients Better Their Skills for Jobs

In the past, numerous remarkable patients have garnered recognition and employment opportunities through charity booths, charity sales, and talent talks. To encourage patients and their family membe ...