News

Jul.08, 2023

Rare Talent Classes are on the Road !

The first session of the Rare Disease Welfare Center's talent classes has started since March2023, with a total of eight classes. This is also the first regular program at Center, which al ...

Jul.08, 2023

National Palace Museum & ACP

By making advance medical decisions, people could decide beforehand what kind of medical treatment they want or don't want at the terminal of their lives, allowing them to have the right to a dig ...

Jul.02, 2023

RD Workshop for Medical Students

Rare diseases occur quite sparsely, but they cover a wide range of symptoms and can take some time to be diagnosed. Most professionals only learn about rare diseases from textbooks and may never hav ...

Jul.02, 2023

Horticultural Stress Relief Activity

On a hot summer day, the Rare Disease Welfare Center hosted an experience activity of stress relief through horticultural therapy that was full of vitality and healing, with the attendance of30me ...

Jul.02, 2023

CMT Group Meet-up

TFRD has been organizing several social events for patients with Charcot-Marie-Tooth Disease (CMT) since2008. This year, TFRD held its9th CMT patient social event on July2 at the R ...

Jun.28, 2023

Groups Searching for Leisurely Living

In addition to the deterioration of physical functioning, patients with rare diseases may also experience changes in their psychological state. For the first time, TFRD combined a physical fitne ...