News


RD Youth Vocational Experience Camp

Due to their physical limitations, individuals with rare diseases may face unfriendly environments and a lack of learning resources when attending school. Securing job opportunities in the workplace is also challenging for them. In response, TFRD organized the "Rare Disease Youth Vocational Experience Camp" from August 20 to 22. The camp brought together 24 individuals with rare diseases and 6 of their siblings at the Rare Disease Welfare Center. During this event, participants gained insights into various vocational experiences.

 They had the opportunity to work in various businesses at the Center, such as plant gardening, a hot pot restaurant, a beverage store, and a chicken cake shop, among others. The participants acquired valuable skills relevant to the workplace, enabling them to gain a better understanding of their own interests and strengths. This experience prompted them to contemplate and plan more thoughtfully for their future careers.

Reflecting on the three-day course, participants shared their thoughts: "This activity has made me realize that the work I usually see is actually not that simple." "I enjoyed the photography class the most; it's so much fun to take photos!" "COMEBUY is so enjoyable." Additionally, everyone bravely expressed their dreams: "In the future, I want to be an engineer, an art teacher, a designer, a music producer...". Let's hope that everyone maintains this passion, overcomes the challenges posed by rare diseases, and courageously pursues their dreams.

TFRD expresses gratitude to the Taoyuan-Hsinchu-Miaoli Regional Branch of the Workforce Development Agency, Ministry of Labor, for sponsoring this event. TFRD would also like to extend its thanks to the Fang Hsing-Chung Social Welfare Foundation for Horses in Education and Health, the Taoyuan Life Tree Leadership Association, and CHOUKI International Company for their support in ensuring the success of the Rare Disease Youth Vocational Experience Camp.

Translator: David Lee (Becker Muscular Dystrophy)