The 3rd Osmanthus Concert and RD Family Day

Thanks to the dedication of Prof. Tseng Min-Chieh—co-founder of TFRD and a professor at National Taipei University’s (NTPU) Department of Social Work—the renowned NTPU Wind Band once again shared the healing power of music with the rare disease community. On April 26th (Saturday), under the baton of conductor Mr. Zou Jia-Hung, the ensemble brought over 30 talented students to perform at the Rare Disease Welfare Center (RDWC). This marks the band’s third visit, continuing a tradition of warmth and solidarity through music.

The NTPU Wind Band not only captivated the audience with a diverse repertoire, offering families a multicultural musical journey, but also created an unforgettable moment by inviting three rare disease patients to take the stage as guest conductors. The collaboration between the musicians and the novice maestros was met with resounding applause, moving attendees deeply. One mother, whose child lives with a rare disease, shared emotionally: “Though my daughter has lost nearly all her vision, she could feel the energy of the performers beside her. This experience touched our hearts in a way words can’t describe.”

In conjunction with Mother's Day, TFRD honored ten dedicated mothers of children with rare diseases, recognizing their unwavering commitment and resilience. The event was filled with a warm and lively atmosphere. An ukulele class led by LHON patients delivered an outstanding performance, and several patients also sang live, showcasing their diverse talents. Additionally, the venue featured booths prepared by rare disease artisans, fun games, freshly cooked meals, and various local specialties and experiential activities from the Guanxi Township.
The event attracted 90 rare disease families representing over 30 different conditions, with corporate volunteers also participating, bringing the total number of attendees to over 400. We sincerely thank government representatives, compassionate enterprises, and the board members of TFRD for their enthusiastic participation and support, which infused the Rare Disease Family Day with warmth and blessings.

Translator: David Lee (Becker Muscular Dystrophy)