News

Mar.06, 2010

Press Conference of Physical Therapy DVD

Press Conference to Announce Release of Simple Guides to Rare Disease Physical Therapy DVD Occurring in extremely low frequencies, rare diseases are very diverse and complicated. So far ...

Sep.30, 2009

TFRD to Create Employment Opportunity

TFRD to Create Employment Opportunity with Enterprises Occupation does not only create income but also the proof of self values. However, most rare disease patients are limited from labor ma ...

Aug.01, 2009

ZAVESCA for Niemann-Pick C Is Finally Reimbursed

Taiwan's regulations and subsidization for drugs considering rare diseases is based on the discussion of the "Rare Disease and Orphan Drug Committee". If the Committee believes t ...

May.31, 2009

The Story of Jing-Yang Lin

Embrace Your Dream and Fly:The Story of Jing-Yang Lin Written by Lien-Ye Wang, teacher of painting class of Taiwan Foundation for Rare Disorders I met Jing-Yang at the foundation&r ...

Apr.01, 2009

Upcoming: 2009 International Conference

Upcoming:"2009International Conference of National Policies and Actionson Rare Disease" Monday12October2009Joyful Ballroom, B2, Sheraton Taipei Hotel, Taiwan Taiwan's R ...

Mar.21, 2009

Diagnosis of 5 RD Reimbursed by TFRD

Diagnosis of Five Rare Diseases Reimbursed by Taiwan Foundation for Rare Disorders For many rare disease patients, the difficulty in obtaining the correct diagnosis is thefirst dramatic hurd ...