News

Jun.05, 2023

Two-Day Tour for New Members

Rare diseases are diverse and rare, with many new members of the Firefly Family joining TFRD every year. Starting from2021, TFRD has organized "Two-Day Tour for New Members" ...

May.13, 2023

Osmanthus Concert

On the eve of Mother's Day, the Rare Welfare Center organized its first professional music performance, with36students from the National Taipei University Wind Band, the winner of the20 ...

Apr.26, 2023

Let's go to Mazu Procession!

In2019, TFRD took families with rare diseases to experience the Dajia Mazu Procession for the first time, and the feedback from the patients was overwhelmingly touching. Now, after the pandem ...

Apr.20, 2023

Gift Bags by Rare Craftsmen

EXCELsior, which has long been involved in the research and development of orphan drugs, collaborated with TFRD to launch a gift bag made of canvas in April this year. The unique gift box f ...

Apr.17, 2023

Delegation of the Legislative Yuan Comes!

Since its founding in1999, TFRD has considered itself as a third department outside of the government capable of pooling resources with the power of the private sector to help RD patients be tr ...

Apr.15, 2023

First experience at White House

Due to their medical conditions, RD patients may experience hindered physical development due to a lack of environmental and multi-sensory stimulation. To address this issue, TFRD's Taich ...