News

May.24, 2010

Extraordinary measures DVD released

The DVD of “Extraordinary Measures”, the movie based on the true story of Dr. Chen Yuan-tsong’s research on the live-saving drug for Pompe diseases patients, was released i ...

May.20, 2010

7th IPWSO World Conference, 20 to 23 May 2010

Every three years International Prader-Willi Syndrome Organization (IPWSO), in conjunction with a host country, holds an international PWS conference. T his year, the international conf ...

May.01, 2010

Power Subsidy Program Launched

Power Subsidy Program for the Home-care Ventilator-dependent Patients Launchedon May1, 2010. After raising the power rate twice, the Taiwan Power Company adopted an accumulativepricing sch ...

Mar.06, 2010

Press Conference of Physical Therapy DVD

Press Conference to Announce Release of Simple Guides to Rare Disease Physical Therapy DVD Occurring in extremely low frequencies, rare diseases are very diverse and complicated. So far ...

Sep.30, 2009

TFRD to Create Employment Opportunity

TFRD to Create Employment Opportunity with Enterprises Occupation does not only create income but also the proof of self values. However, most rare disease patients are limited from labor ma ...

Aug.01, 2009

ZAVESCA for Niemann-Pick C Is Finally Reimbursed

Taiwan's regulations and subsidization for drugs considering rare diseases is based on the discussion of the "Rare Disease and Orphan Drug Committee". If the Committee believes t ...