News

Jun.28, 2023

Groups Searching for Leisurely Living

In addition to the deterioration of physical functioning, patients with rare diseases may also experience changes in their psychological state. For the first time, TFRD combined a physical fitne ...

Jun.15, 2023

CMUH Donated Supplies

Last year, China Medical University Hospital (CMUH) not only donated charity materials, but also initiated a rare disease art exhibition for the public to see the extraordinary vitality of pa ...

Jun.05, 2023

Two-Day Tour for New Members

Rare diseases are diverse and rare, with many new members of the Firefly Family joining TFRD every year. Starting from2021, TFRD has organized "Two-Day Tour for New Members" ...

May.13, 2023

Osmanthus Concert

On the eve of Mother's Day, the Rare Welfare Center organized its first professional music performance, with36students from the National Taipei University Wind Band, the winner of the20 ...

Apr.26, 2023

Let's go to Mazu Procession!

In2019, TFRD took families with rare diseases to experience the Dajia Mazu Procession for the first time, and the feedback from the patients was overwhelmingly touching. Now, after the pandem ...

Apr.20, 2023

Gift Bags by Rare Craftsmen

EXCELsior, which has long been involved in the research and development of orphan drugs, collaborated with TFRD to launch a gift bag made of canvas in April this year. The unique gift box f ...