Celebrating the 25th Birthday

"Mom, can I go to the amusement park…?"
For many kids, it’s a simple question. But for families affected by rare disorders, everyday joys like this can be difficult to experience. To celebrate its 25th anniversary, the Foundation hosted a heartwarming carnival designed especially for children and families living with rare conditions across Taiwan. More than a celebration, it was a day where dreams came true—if only for a moment.
Founder Serena Wu reflected,

　“Twenty-five years ago, many families affected by rare disorders stayed hidden, afraid of being seen. Today, we 　　see something amazing. Society in Taiwan has become more understanding and supportive. Families now feel 　　empowered to step into the light—and many have achieved things we never imagined possible back then.”

　　The event welcomed 450 families representing over 100 different rare conditions. With the help of corporate 　　volunteers, attendance soared past 2,500 people—making it the largest outdoor gathering in the 　　Foundation’s history. It became a joyful reunion of Taiwan’s “firefly families.”

More than 20 booths run by rare artisans and patient groups added a creative spark to the day. For the first time, food trucks joined the event, filling the air with delicious aromas. The main stage lit up with an exciting opening performance, followed by two hours of non-stop showcases from patients, highlighting their talent, courage, and spirit.

Throughout the park, visitors enjoyed interactive games, street magic, trivia with prizes, and info booths that helped raise awareness about rare disorders—all creating an atmosphere of fun and learning.

As the evening came to a close, a three-minute fireworks show—the first ever in Foundation history—lit up the night sky. It was a dazzling end to a day filled with laughter, pride, and unforgettable memories.

For 25 years, the Foundation has grown thanks to the love and support of the public and caring companies. Their generosity has helped turn dreams into reality for children living with rare disorders. We’re deeply grateful to everyone who continues to walk this journey with us.

Translator: Jia-Yi Huang
Reviewer: Giancarlo Barbieri Rotolo