News

Nov.13, 2023

First White Paper on Rare Diseases

Over the past20years, Taiwan has become a global leader in rare disease care and human rights advocacy, as well as a model for countries around the world to promote rare disease policies. However, ...

Sep.09, 2023

Partnering with Taoyuan Hospital

The Rare Disease Welfare Center was established in October2022with the " Administrative Service Office for Patients in Taoyuan, Hsinchu, and Miaoli ". The Taoyuan Hospital of ...

Aug.25, 2023

RD Youth Vocational Experience Camp

Due to their physical limitations, individuals with rare diseases may face unfriendly environments and a lack of learning resources when attending school. Securing job opportunities in the workplace ...

Aug.02, 2023

Give Likes to Dads

Families caring for children with rare diseases face a challenging journey that requires long-term commitment. To recognize and support these families, on August2, TFRD organized a celebration ...

Jul.24, 2023

Bathing Experience At RD Welfare Center

When the Rare Disease Welfare Center was initially conceived, two welfare centers were designed to offer bathing services catering to the special bathing needs of patients. Commencing this year, ...

Jul.08, 2023

National Palace Museum & ACP

By making advance medical decisions, people could decide beforehand what kind of medical treatment they want or don't want at the terminal of their lives, allowing them to have the right to a dig ...