News

Nov.18, 2011

Taiwan Little People Association Established

Fifteen years ago, patients with achondroplasia established the “Little People Association”, which assists patients to hold events like medical, psychological, leisure, and so on every ...

Oct.25, 2011

Nutrition Classroom for IEM patients

In order to make patients with inborn error of metabolism and their families have a better understanding of the production of low-protein foods, TFRD organized an activity called “Nutritio ...

Aug.31, 2011

Taiko Camp in Summer

TFRD held a Taiko Camp in summer of2011, every Tuesday afternoon from July19th to August23th. There were15patients and one sibling attended this camp. Teacher Little Bear from CPM Tai ...

Jun.21, 2011

The Book Launch Party: Courage of 120 cm

When Chen Youhua was five months old, her mother noticed Chen was unable to sit with her flabby body. Soon after, Chen was diagnosed with Achondroplasia, a rare disease caused by genetic mutati ...

Apr.19, 2011

Amend Regulations for Rare Diseases

The Government amended “Regulations Governing Subsidies for Medical and Healthcare Expenses for Rare Diseases”(罕見疾病醫療照護費用補助辦法) focuses on enhancing the diagnosis an ...

Apr.01, 2011

Cross-Strait Medical Protection and Policy Meeting

The First Cross-Strait Medical Protection and Policy of Rare Diseases Exchange Meeting To promote the development of cross-strait policies on rare diseases, the establishment of medical ne ...