News

Oct.12, 2009

2009 International Conference in Taiwan

2009International Conference of National Policies and Actions on Rare Disease Comes to a Completion In the past ten years, the Taiwan’s push and support for rare disorder treatment, h ...

Sep.30, 2009

TFRD to Create Employment Opportunity

TFRD to Create Employment Opportunity with Enterprises Occupation does not only create income but also the proof of self values. However, most rare disease patients are limited from labor ma ...

Sep.20, 2009

Patient Art Exhibit a Great Success

Ten Years of Color, Love Knows no Disorder. Patient art exhibit a great success! In order to celebrate the10th anniversary of our foundation, from the11th to the20th of September, on the4th f ...

Sep.04, 2009

Concert in Celebration TFRD's 10th Anniversary

"The Sound of Love" Concert in Celebration of the10th Anniversary of TFRD Last year, in order to celebrate the10th anniversary of the foundation, TFRD choir members from Taip ...

Aug.01, 2009

ZAVESCA for Niemann-Pick C Is Finally Reimbursed

Taiwan's regulations and subsidization for drugs considering rare diseases is based on the discussion of the "Rare Disease and Orphan Drug Committee". If the Committee believes t ...

May.31, 2009

The Story of Jing-Yang Lin

Embrace Your Dream and Fly:The Story of Jing-Yang Lin Written by Lien-Ye Wang, teacher of painting class of Taiwan Foundation for Rare Disorders I met Jing-Yang at the foundation&r ...