News

Sep.04, 2009

Concert in Celebration TFRD's 10th Anniversary

"The Sound of Love" Concert in Celebration of the10th Anniversary of TFRD Last year, in order to celebrate the10th anniversary of the foundation, TFRD choir members from Taip ...

Aug.01, 2009

ZAVESCA for Niemann-Pick C Is Finally Reimbursed

Taiwan's regulations and subsidization for drugs considering rare diseases is based on the discussion of the "Rare Disease and Orphan Drug Committee". If the Committee believes t ...

May.31, 2009

The Story of Jing-Yang Lin

Embrace Your Dream and Fly:The Story of Jing-Yang Lin Written by Lien-Ye Wang, teacher of painting class of Taiwan Foundation for Rare Disorders I met Jing-Yang at the foundation&r ...

May.24, 2009

Teenage Interpersonal Relationship Camp

Let's Be Friends: Teenage Interpersonal Relationship Camp To encourage teenage patients to have a healthy personality development and good social adaption, our foundation created a series ...

Apr.01, 2009

Upcoming: 2009 International Conference

Upcoming:"2009International Conference of National Policies and Actionson Rare Disease" Monday12October2009Joyful Ballroom, B2, Sheraton Taipei Hotel, Taiwan Taiwan's R ...

Mar.21, 2009

Diagnosis of 5 RD Reimbursed by TFRD

Diagnosis of Five Rare Diseases Reimbursed by Taiwan Foundation for Rare Disorders For many rare disease patients, the difficulty in obtaining the correct diagnosis is thefirst dramatic hurd ...