News

May.24, 2009

Teenage Interpersonal Relationship Camp

Let's Be Friends: Teenage Interpersonal Relationship Camp To encourage teenage patients to have a healthy personality development and good social adaption, our foundation created a series ...

Apr.01, 2009

Upcoming: 2009 International Conference

Upcoming:"2009International Conference of National Policies and Actionson Rare Disease" Monday12October2009Joyful Ballroom, B2, Sheraton Taipei Hotel, Taiwan Taiwan's R ...

Mar.21, 2009

Diagnosis of 5 RD Reimbursed by TFRD

Diagnosis of Five Rare Diseases Reimbursed by Taiwan Foundation for Rare Disorders For many rare disease patients, the difficulty in obtaining the correct diagnosis is thefirst dramatic hurd ...

Mar.17, 2009

Best Memories to Our Close Friend, Pam Faith Eisen

At the beginning of our foundation, instead of merely focusing on domestic patientservices, we also kept contact with international rare diseases organizations forlatest information such as designate ...

Feb.28, 2009

Low-Protein Food Coupon Is Now on the Go

Dietary control is the most effective treatment for patients with inherited metabolicdisorders like Phenylketonuria, Maple Syrup Urine Disease, Amino Acid MetablicDisorders and Homocystinur ...

Dec.10, 2008

Tissue Bank: Progressing Report

In order to make sure biospecimen and information provided by Taiwan RareDisease Tissue Bank can properly meet future research demand, the third expertmeeting was held in May to discuss the con ...