Ou and Wu Listed in Top 100 Civilian Heroes !

Ou Ling-Jun and Wu Jin-Hui Listed in Top 100 Civilian Heroes of Global Views Monthly

TFRD is very honored and happy to share the good news with you. Ou Ling-Jun, also known as “Mommy Orang,” who has a child with rare diseases (RD) and has been TFRD’s volunteer and life education instructor for a long time, and Wu Jin-Hui, aka “Daddy Wu,” the head of the Niemann-Pick Disease Fellowship and the keyboardist in the film "Rock Me to the Moon" were selected into the Top 100 Civilian Heroes in the special issue of Global Views Monthly, Seeing Taiwan's Civilian Heroes.

After her son, Yong-Qiang, died of Mucopolysaccharidoses eight years ago, Mommy Orang dried her tears and continued to search for the meaning of life for her child and herself.

Yong-Qiang once left a message in his painting: "My body can't help others, but my heart can help. My body is not tall enough, but my heart is taller than anyone else. My body does not have wings, but my heart can fly everywhere.” Mommy Orang has been actively involved in volunteering for TFRD, from being Mommy the storyteller, a counseling volunteer to a life education instructor. She has published a book "Mommy Orange - 3/4 Happiness." It is hoped that via Yong-Qiang's story, parents with RD children can build up their strength to fly.

It has been a busy and productive year for Daddy Wu, who is the director of a church. The documentary "Rock Me to the Moon", released in October 2013, is about the story of Daddy Wu and five other dads who formed a band to appear at Ho-hai-yan Rock Festival. Also, they won the Golden Horse Award for Best Original Song by the movie song "I Love You."

Daddy Wu’s daughter, Yi-xin, and son, Yi-nuo, were diagnosed with Niemann-Pick Disease Type C successively when they were in grade school. As he watched his children's limbs gradually lose their coordination, Daddy Wu was resolute in bidding farewell to the blues. He realized that just being with his children is the best happiness he should cherish. He took them to Burkina Faso to witness the needs of different people in different parts of the world and think about how to help or encourage others. Writing down his family's story, Daddy Wu published the book "A Lifetime of Rare Happiness," hoping to bring more positive thoughts to this society.

Via Global Views Monthly, a reading platform that penetrates the public, more people can learn more about RD and see the resilience of RD families. Let's once again congratulate Mommy Orang and Daddy Wu for being listed in Top 100 Civilian Heroes. We are proud of you!

Translator: David Lee (Becker Muscular Dystrophy)