News

Sep.14, 2021

2021 TFRD Art & Culture Creative Exhibition

From October2 to25, TFRD will hold2021Taiwan Foundation for Rare Disorders Art & Culture Creative Exhibition in Hall2 on the first floor of the Chiang Kai-shek Memorial Hall. R ...

Aug.31, 2021

Order Handcrafted Gift Box by Rare Craftsmen

Rare Craftsmen is a group made up of rare disease patients and their families. Many mothers among these families choose to make food or handicrafts in order to earn a living at home, as they are un ...

Aug.25, 2021

Congrats ! Winning the 7th Spreading Charity Award

CHEN YUNG-TAI Charitable Trust (CYTCT) started its first Spreading Charity Award in2015with the idea of contributing to the society in the most efficient way. The Spreading Cha ...

Aug.24, 2021

RD Students Awarded Presidential Education Prize

The Presidential Education Prize Award Ceremony was held on August20at the Yuan-Shan Hotel Taipei. The organizers of the2021Presidential Education Prize chose408students from among the ...

Aug.17, 2021

Symposium on Rare Disease Schooling Experience

When children with rare diseases (RD) are entering school, parents feel worried whether their children can adapt to school life. To provide more reference experience and information for parents of ...

Aug.13, 2021

Voices Support for SMA Pleading for Medication

It was reported that many media and legislators raised their voices for the families of SMA patients after the families wrote a letter to the President to plead for drug coverage. In fact, one o ...