News

Aug.17, 2021

Symposium on Rare Disease Schooling Experience

When children with rare diseases (RD) are entering school, parents feel worried whether their children can adapt to school life. To provide more reference experience and information for parents of ...

Aug.13, 2021

Voices Support for SMA Pleading for Medication

It was reported that many media and legislators raised their voices for the families of SMA patients after the families wrote a letter to the President to plead for drug coverage. In fact, one o ...

Aug.08, 2021

Rare Daddies Serving Warm Dishes

Once a year, Father's Day is the best time to cook with your own hands! On August6, 21Rare daddies (the fathers of RD patients) joined the cooking challenge with their families on the eve ...

Jul.02, 2021

Yang Jhen Donates Children's Masks

Taiwan is now on Level3 alert, with major hospitals regulating staff access. The measure seriously affects the treatment and care of patients with rare diseases (RD). For example, metabolic pati ...

Jun.02, 2021

Care for Families Uninterrupted Despite Epidemic

Taiwan has raised epidemic warning to level3, and the major hospitals have upgraded their surveillance. TFRD has recently received concerns from some patients about whether their regular visits t ...

May.30, 2021

Notes on Injection of COVID-19 Vaccine for RD

As announced by the Centers for Disease Control, Ministry of Health and Welfare (MOHW) in February, patients with rare diseases (RD) are included in Group9 of the government-funded CO ...