News

Sep.07, 2006

NPC Patients Ask for Medication Reimbursement

Niemann-Pick Patients Ask for Medication Reimbursement Patient association for Niemann-Pick Disease had its inauguration ceremony on Sep. 07, 2006and at the same time, the medical team from ...

Sep.04, 2006

Seminars for Medical Personnel and Patient Groups

As people's awareness of issues for rare disease increases, people's needs andconcern for genetic counseling increases as well. However, average medicalpersonnel, specialists serving rare di ...

Sep.02, 2006

TFRD Invited to International Symposium in Korea

TFRD Invited to the International Rare Disease Symposium in Korea TFRD's vice president, Dr. Min-Chieh Tseng was invited for a speech at theRare Disease International Symposi ...

Aug.12, 2006

We Should Be Humble International Press Conference

We Should Be Humble When Facing the Dignity of Life?? International PressConference We just held an international press conferece on Aug.12, which was about the sadcase of misdiagnosis of ...

Jun.23, 2006

Taiwan's New Expanded Newborn Screening Policy

Newborn screening has been implemented for22years in Taiwan. Method development pilot programs were carried out in mentally retarded children between1982and1983in Taiwan. Later in1984, based on t ...

May.02, 2006

Myozyme, First Treatment Ever for Pompe Disease

Academia Sinica, Taiwan announced the first treatment ever for Pompe disease called Myozyme, co-developed by Genzyme, based in Cambridge, Mass along with several medical institutions in the U ...