News

Aug.08, 2021

Rare Daddies Serving Warm Dishes

Once a year, Father's Day is the best time to cook with your own hands! On August6, 21Rare daddies (the fathers of RD patients) joined the cooking challenge with their families on the eve ...

Jul.02, 2021

Yang Jhen Donates Children's Masks

Taiwan is now on Level3 alert, with major hospitals regulating staff access. The measure seriously affects the treatment and care of patients with rare diseases (RD). For example, metabolic pati ...

Jun.02, 2021

Care for Families Uninterrupted Despite Epidemic

Taiwan has raised epidemic warning to level3, and the major hospitals have upgraded their surveillance. TFRD has recently received concerns from some patients about whether their regular visits t ...

May.30, 2021

Notes on Injection of COVID-19 Vaccine for RD

As announced by the Centers for Disease Control, Ministry of Health and Welfare (MOHW) in February, patients with rare diseases (RD) are included in Group9 of the government-funded CO ...

May.14, 2021

Flash Mob Love from YouTuber KU & Britshake

Nowadays, the internet spreads news across borders in a second, and YouTube is one of them. Ku's dream, a French YouTuber, has recorded his experience of living in Taiwan through videos an ...

May.06, 2021

SMA Concentric Circles Café

SMA (Spinal Muscular Atrophy) is a disease with a high genetic risk. In Taiwan, with an estimated63,000screening cases annually, SMA screening has been promoted since2005and is still a self ...