Events

Jul.02, 2023

RD Workshop for Medical Students

Rare diseases occur quite sparsely, but they cover a wide range of symptoms and can take some time to be diagnosed. Most professionals only learn about rare diseases from textbooks and may never hav ...

Jul.02, 2023

CMT Group Meet-up

TFRD has been organizing several social events for patients with Charcot-Marie-Tooth Disease (CMT) since2008. This year, TFRD held its9th CMT patient social event on July2 at the R ...

Jul.02, 2023

Horticultural Stress Relief Activity

On a hot summer day, the Rare Disease Welfare Center hosted an experience activity of stress relief through horticultural therapy that was full of vitality and healing, with the attendance of30me ...

Jun.28, 2023

Mind Theater

This time, Wei Da-Hong, a counselor from Li Ren Psychological Clinic, was invited by TFRD’s Mind Theater, along with two trainee counselors, to watch the movie " Starfish &qu ...

Jun.15, 2023

CMUH Donated Supplies

Last year, China Medical University Hospital (CMUH) not only donated charity materials, but also initiated a rare disease art exhibition for the public to see the extraordinary vitality of pa ...

Jun.05, 2023

Two-Day Tour for New Members

Rare diseases are diverse and rare, with many new members of the Firefly Family joining TFRD every year. Starting from2021, TFRD has organized "Two-Day Tour for New Members" ...