Home About TFRD Events
On a hot summer day, the Rare Disease Welfare Center hosted an experience activity of stress relief through horticultural therapy that was full of vitality and healing, with the attendance of 30 ...
Rare diseases occur quite sparsely, but they cover a wide range of symptoms and can take some time to be diagnosed. Most professionals only learn about rare diseases from textbooks and may never hav ...
TFRD has been organizing several social events for patients with Charcot-Marie-Tooth Disease (CMT) since 2008. This year, TFRD held its 9th CMT patient social event on July 2 at th ...
This time, Wei Da-Hong, a counselor from Li Ren Psychological Clinic, was invited by TFRD’s Mind Theater, along with two trainee counselors, to watch the movie " Starfish &qu ...
Last year, China Medical University Hospital (CMUH) not only donated charity materials, but also initiated a rare disease art exhibition for the public to see the extraordinary vitality of pa ...
Rare diseases are diverse and rare, with many new members of the Firefly Family joining TFRD every year. Starting from 2021, TFRD has organized "Two-Day Tour for New Members" ...
Mar.08, 2024
Jul.26, 2023
Jul.17, 2023
Jul.15, 2023
Jul.08, 2023
Jul.02, 2023