Events

Feb.16, 2025

Special Gathering For Niemann-Pick Disease Group

Established in2006, the Niemann-Pick Disease Support Group is about to enter its19th year. On Saturday, February15th, the group held a special gathering to show its support for patients and t ...

Dec.09, 2024

Networking Event For Patients With RSS

Patients with Russell-Silver Syndrome (RSS) are smaller in stature and prone to conditions such as uneven legs, feeding difficulties and heart defects, but they are no less ambitious. A total ...

Dec.09, 2024

Heartwarming Trip for Volunteers (Taichung Branch)

On a December weekend, TFRD Taichung Branch organized an excursion to the Guanshan Pastoral Area of Qingjing Farm, leading a group of dedicated volunteers through winding mountain roads t ...

Dec.02, 2024

Mindful Compassion: An Infinite Power

Service providers working in the field of rare diseases are often on the front lines, offering crucial support to affected families. Yet, the demands of long hours and heavy workloads can take a tol ...

Dec.02, 2024

RDWC Helps Patients Relax with Phytoncide Baths

Time quietly slips into autumn. From October to November, the Rare Disease Welfare Center (RDWC) hosted its final two bathing therapy sessions of2024, warmly welcoming patients not only to ...

Nov.18, 2024

ESMT Educational Foundation Empowers RD Patients

Ukulele Music Training Course To broaden patients’ exposure to music, renowned piano composer Wu Cheng-wan, who lives with Leber’s hereditary optic neuropathy (LHON), organized ...