Events

Jul.15, 2023

A Social Event For Individuals With CCHS

This year, TFRD, in collaboration with the Department of Medical Genetics at NTU, hosted a social event for individuals with CCHS (Congenital Central Hypoventilation Syndrome) on J ...

Jul.08, 2023

Rare Talent Classes are on the Road !

The first session of the Rare Disease Welfare Center's talent classes has started since March 2023, with a total of eight classes. This is also the first regular program at Center, which a ...

Jul.02, 2023

RD Workshop for Medical Students

Rare diseases occur quite sparsely, but they cover a wide range of symptoms and can take some time to be diagnosed. Most professionals only learn about rare diseases from textbooks and may never hav ...

Jul.02, 2023

Horticultural Stress Relief Activity

On a hot summer day, the Rare Disease Welfare Center hosted an experience activity of stress relief through horticultural therapy that was full of vitality and healing, with the attendance of 30 ...

Jul.02, 2023

CMT Group Meet-up

TFRD has been organizing several social events for patients with Charcot-Marie-Tooth Disease (CMT) since 2008. This year, TFRD held its 9th CMT patient social event on July 2 at th ...

Jun.28, 2023

Mind Theater

This time, Wei Da-Hong, a counselor from Li Ren Psychological Clinic, was invited by TFRD’s Mind Theater, along with two trainee counselors, to watch the movie " Starfish &qu ...