Events

May.06, 2021

SMA Concentric Circles Café

SMA (Spinal Muscular Atrophy) is a disease with a high genetic risk. In Taiwan, with an estimated63,000screening cases annually, SMA screening has been promoted since2005and is still a self ...

Apr.26, 2021

Clear Voice & Heavenly Melody Choir Sing Together

The18-year-old Clear Voice Chorus, made up by singing lovers working in the Control Yuan and their relatives or friends, has been organizing concerts for the past ten years. This year, TFRD ...

Mar.23, 2021

Pushing Limit via Youth Exploration Camp

Due to their illness, patients with rare diseases (RD) face more difficulties than others in living, socializing, and learning. TFRD has organized youth interpersonal camps and ball camps over ...

Mar.17, 2021

Eastern Taiwan Tour - Love with PX Mart

There are about350families with rare diseases (RD) in Hualien and Taitung. However, due to the limited medical resources in the eastern region as well as the geographical factors, it is difficul ...

Mar.15, 2021

600 Patchwork Bags Sold within 10 Days

For the first time, Taiwan Foundation for Rare Disorders (TFRD) worked with momo e-commerce, Fubon Financial, and Fubon Charity Foundation, launching charity sales online to promote patc ...

Mar.02, 2021

SOGO Taichung Joint Exhibition

TFRD has long been focusing on raising public awareness of rare diseases (RD). This time, TFRD cooperated with SOGO Taichung again to host "Art of the Heart - Illuminated Vita ...