Events

Jan.25, 2019

TripMoment VR: Staying Here, Seeing the World

Online travel media “TripMoment” has work with the virtual reality technical team “VR Moment”, building the very first “TripMoment VR” at the eastern dist ...

Dec.30, 2018

Translation Volunteers Help Reopen English Website

The TFRD has established a translation community this year in order to reopen the English website. Four patients of the TFRD, William, Rachel, Ellen and Flora, who volunteered to help t ...

Dec.28, 2018

SOGO Holds Christmas Party for Children

TFRD cooperates with SOGO Department Store and sends Christmas presents to the rare disease children. “Dear Xiao-jie, we don’t have to use our eyes. Let’s feel with our ...

Dec.22, 2018

Real Santa Claus Comes From Finland

Santa Claus from Finland sent gifts to rare disease children in the office of TFRD on December22th, by the contribution of Fubon Charity Foundation, Fubon Life Insurance Co., Ltd., and ...

Dec.21, 2018

Rotary Donates NT$1.1 million to EB Patients

Rotary International donated NT$1.1million to Hereditary Epidermolysis Bullosa (EB) patients via the Taiwan Foundation for Rare Disorders (TFRD) for wound dressings and special formul ...

Dec.17, 2018

Taiwan ERT 20th Anniversary Celebration

Families have joined the TFRD in celebrating the20th anniversary of the introduction of life-saving Enzyme Replacement Therapy (ERT) into Taiwan, expressing appreciation to those who contr ...