Events

Jul.23, 2019

Taiwan and Brazil Exchange Information about RD

There were five members of Brazilian Congress visited Taiwan from July22to25. One of the Congress members, Carla Zambelli, is the vice chairperson of the “Rare Diseases Front Line&r ...

Jul.06, 2019

Porphyria Patient Exchange Between Cross-Strait

At the end of2018, Dr. Hong-Zhou Guo of Linkou Chang Gung Memorial Hospital was invited by Chinese Organization for Rare Disorders (CORD) to share the experience in treatment of Tai ...

Jun.09, 2019

Rare 20 - LOVE WITH LIFE Music Concert

Rare20 - LOVE WITH LIFE Music Concert - All Stars Sing for Public Welfare About half of a year ago, The Chief Executive Officer of KEDP trust, Tim Lin called and said th ...

Apr.26, 2019

2019 Hundred Celebrities Charity Sales

The ninth charity sale “Art Your Compassion” was grandly held at Taipei World Trade Center Hall3. 357paintings drawn by celebrities from all over the world were successfully sold ...

Apr.15, 2019

Crazy March- First Experience of Mazu Pilgrimage

TFRD brought65patients and their families to join a one-day experience of Mazu Pilgrimage on April12. The owner of Dajia Zhen Lan Temple introduced us the leader of the parade (Zhentou), ...

Mar.22, 2019

Automated Assistive Devices Create Convenient Life

Rehabilitation is always an important task for rare disease patients as they work to continue to maintain physical function. However, for those patients who are feeble or susceptible to infection an ...