Events

Dec.15, 2018

2018 Patients of Moya Moya Disease Meet-up

There were17families, 34patients joining the meetup on December15, 2018. According to the survey before this reunion, we found that the patients are concerned about pre-operation caring and rehabil ...

Dec.13, 2018

Challenger Cup for Disabled Children

2018Challenger Cup- Charity Baseball Game for Disabled Children On December9th, TFRD formed baseball team of young rare diseases patients to join2018Challenger Cup- Charity Baseball G ...

Dec.03, 2018

2018 Reunion of Williams Syndrome Patients

Reunion of Williams Syndrome Patients attracts many people each year. This year, it broke the record by being warmly attended by36families, 125people. This year, we invited Teacher Xie of Tai ...

Nov.17, 2018

TFRD 16th Scholarship Ceremony

“Facing the future, facing the challenge.” TFRD16th Scholarship Ceremony The TFRD provided NT$1,931,000in its annual scholarship program this year to304patients of89kinds of ...

Nov.11, 2018

2018 Get-together of Angelman Patients

This year, with TFRD’s arrangement, Angelman Syndrome (AS) patients’ families got together in Taichung, and had a great time in a series of sense and sensibility activities. Sin ...

Nov.03, 2018

Cross-Disease Event for Visually Impaired Patients

The Taiwan Foundation for Rare Disorders (TFRD) has held cross-disease events for three consecutive years as part of its efforts to help families with visually impaired patients share their e ...