Events

Aug.01, 2018

2018 HSP Patients Work Out Together

Twenty-eight Hereditary Spastic Paraplegia (HSP) patients and their families learned how to strengthen their muscles by working out at an event initiated by President Gu Yun-sung of the Tai ...

May.10, 2018

Barrier-free Travel around the Countryside

The weather was cool in the early morning of May7, 2018. Many barrier-free taxis, Luxgen7s, were waiting in line at Taiwan High Speed Rail Wuri Station. 9families, 18patients joined the trip ...

May.08, 2018

Summary of 2017 Annual Report

For the past19years, TFRD (Taiwan Foundation for Rare Disorders) contributes in the fields of policy lobbying, disease prevention and patient care for rare disease families. We are dedicated ...

May.02, 2018

The Fellowship Event of Patient Group

2018The fellowship event of X-linked hypophosphatemic rickets’ patients The fellowship event of X-linked Hypophosphatemic Rickets’ patients has been organized from the year2014. Sin ...

Apr.23, 2018

Health Check and Respite Activity for Rare Disease

【Patients’ Family Services】Health Check and Respite Activity for Rare Disease Family Health Check and Respite Activity for Rare Disease Family has been held by TFRD since2 ...

Apr.17, 2018

Day Care Center and Small-scaled Workshop Visiting

【 Patient Services】Day Care Center and Small-scaled Workshop Visiting After rare disease patients graduated, their families all worry about their future or their lacking of ability to survi ...