Events

Oct.23, 2018

Respite Care Service for Patients' Families

Parents of rare disease families took part in activities in Changhua in central Taiwan on October13for experience exchanging and emotional support. At Beginning Cafe, coffee expert Lion explai ...

Oct.22, 2018

Painting Club Experience- One-day Campus Sketching

On the20th of October, dean of the NTPU College of Social Sciences, Min-Chieh Tseng, who is also the co-founder of Taiwan Foundation for Rare Disorders, conduced to an one-day campus s ...

Sep.20, 2018

The 7th China Rare Disease Summit

The7th China Rare Disease Summit opened in Shanghai greatly during September14-16, 2018. The summit was held by Chinese Organization for Rare Disorders (CORD) and National Children M ...

Sep.11, 2018

2018 De Lange Syndrome and BWS Reunion

The families of Cornelia de Lange Syndrome (CdLS) and Beckwith Wiedemann Syndrome (BWS), a total of33people, were invited to a reunion at Taipei Women’s Center on September9th. ...

Aug.28, 2018

Seminar for ICF certificate renewal

【Patient Activity】The2018seminar for ICF certificate renewal for rare disease patientgroups After the revision of the People withDisabilities Protection Act was implemented in2007, Taiwa ...

Aug.28, 2018

2018 Gathering of Patients with Rare Skin Diseases

The gathering not only showed the support for each other, but also made people with rare skin diseases feel stronger and powerful. A gathering for different rare skin diseases is held on August25. ...