Events

Apr.28, 2015

Social Activities for HoFH

With everyone’s expectation, the first social activities for Homozygous Familial Hypercholesterolemia was finally held in April. Although the current patients were few in number, there are ...

Mar.25, 2015

Asia Rare Disease Conference in Singapore

The Asia Rare Disease Conference hosted by Rainbow Across Borders (RAB) took place in Singapore on March12-13, 2015. There were25rare disease groups and273specialists and patients from13 ...

Feb.02, 2015

"Life Without Disabilities" Receives Achievement

TFRD initiated a project “Life Without Disabilities” with The League for Persons with Disabilities (LPD) and OurCityLove since2012. After three years, 108people with disa ...

Jul.30, 2014

Establish an Emergency Rescue Network

Donated Hemodialysis Machine to Establish an Emergency Rescue Network There were around100rare diseases patients need blood (Hemodialysis), liver and kidney dialysis every year, most of them ...

Jan.08, 2014

"Uninterrupted-Electricity Love"

Loving Generators Donation Generates “Uninterrupted-Electricity Love” A power failure only brings inconvenience to ordinary people temporarily. However, it is a matter of life and ...

Dec.30, 2013

Experience Camp for RD Student’s Assistants

TFRD held the Experience Camp for Rare Disease Student’s Assistants from December28to29at Beitou Resort. It was the first two-day-and-one-night training course to help university s ...