Events

Oct.01, 2007

AADC Patient Group to Fight for Children's Rights

The patient group of AADC was formally established in the fall of 2007 an expectation to help families affected with AADC patients sharing their life stories, caretaking experience, as well a ...

Jul.18, 2007

Exchanging Experience with South Eastern Asia

Exchanging Experience with the Patient Representatives from South Eastern Asia Patient group representatives from south eastern Asian countries visited TFRD on 18, July 2007. They are f ...

Apr.20, 2007

2007 Heavenly Melody Chorus Concert

Heavenly Melody Chorus Concert Full of Laughter and Tears Syue-Fang, a 34-year-old girl with Achondroplasia, who is independent, strong-minded, and enthusiastic, regularly takes 4 hours from ...

Jan.19, 2007

NTUST EMBA Alumni Supports Rare Disorders

Different Businessman: NTUST EMBA Alumni Supports Rare Disorders "Enterprises' ultimate social responsibility is to make the society better.” Bearing this motto in mind ...

Feb.11, 2006

Rare Children's Happy Yuan Xiao Festival

How is yuan xiao made? This year, Taipei Rotary Club Shih-Lin community service team and Kuo Yuan Ye Foods museum invited rare disease children to the museum for Yuan Xian Festival. Chi ...