Events

May.24, 2009

Teenage Interpersonal Relationship Camp

Let's Be Friends: Teenage Interpersonal Relationship Camp To encourage teenage patients to have a healthy personality development and good social adaption, our foundation created a series ...

Nov.03, 2008

Rotary Club Bike Tour around Taiwan to Raise Funds

Rotary Club Bike Tour around Taiwan to Raise Funds for Rare Disease Patients Currently, TFRD has listed203rare disorders in Taiwan -- 70percent of which are either incurable or can onl ...

May.27, 2008

The First Remarkable FOP Forum in Taiwan

A Transnational Friendship Built on FOP, the First Remarkable FOP Forum in Taiwan Fibrodysplasia Qssificans Progressiva, FOP, is a very rare inherited disease with about1 in2 milli ...

Apr.02, 2008

Marathonmad Neil O'Maonaigh-Lennon Runs for RD

Marathonmad Neil O'Maonaigh-Lennon Runs Around the Island For Rare Disorders Early in the morning, Neil O’Maonaigh-Lennon, an English teacher from United Kingdom, started ...

Oct.01, 2007

AADC Patient Group to Fight for Children's Rights

The patient group of AADC was formally established in the fall of2007an expectation to help families affected with AADC patients sharing their life stories, caretaking experience, as well as ...

Jul.18, 2007

Exchanging Experience with South Eastern Asia

Exchanging Experience with the Patient Representatives from South Eastern Asia Patient group representatives from south eastern Asian countries visited TFRD on18, July2007. They are fro ...