Home About TFRD Events
On May5, Taiwan Environmental Protection Association (TEPA) and New Taipei City Councilor Mrs. Lee Weng Yue-e co-organized an event called the Warm Mother's Day - Shopping F ...
SMA (Spinal Muscular Atrophy) is a disease with a high genetic risk. In Taiwan, with an estimated63,000screening cases annually, SMA screening has been promoted since2005and is still a self ...
The18-year-old Clear Voice Chorus, made up by singing lovers working in the Control Yuan and their relatives or friends, has been organizing concerts for the past ten years. This year, TFRD ...
Due to their illness, patients with rare diseases (RD) face more difficulties than others in living, socializing, and learning. TFRD has organized youth interpersonal camps and ball camps over ...
There are about350families with rare diseases (RD) in Hualien and Taitung. However, due to the limited medical resources in the eastern region as well as the geographical factors, it is difficul ...
For the first time, Taiwan Foundation for Rare Disorders (TFRD) worked with momo e-commerce, Fubon Financial, and Fubon Charity Foundation, launching charity sales online to promote patc ...
Jun.24, 2024
Jun.04, 2024
May.25, 2024
May.23, 2024
May.20, 2024
May.07, 2024
May.06, 2024