News

Aug.17, 2018

Assistive Devices Donations by Rotary Club

Sending love to help, rotating healthcare tools – donations of rehabilitation and assistive devices by Rotary Club of Taichung Northwest Almost all rare disease patients have tospend their ...

Aug.07, 2018

Daddy Chef, The Fight is on!

Last year, TFRD held the first event “Daddy Chef” was very succeed. Fathers of rare disease patients competed their cooking skill. The same as a father, the executive chef of Amb ...

Aug.01, 2018

2018 HSP Patients Work Out Together

Twenty-eight Hereditary Spastic Paraplegia (HSP) patients and their families learned how to strengthen their muscles by working out at an event initiated by President Gu Yun-sung of the Tai ...

Jul.06, 2018

2018 President Educational Award

President Educational Award was set to encourage students to face the adversity and bring their positive sides of humanity into play. The students with rare diseases who have suffered from various ...

May.10, 2018

Barrier-free Travel around the Countryside

The weather was cool in the early morning of May7, 2018. Many barrier-free taxis, Luxgen7s, were waiting in line at Taiwan High Speed Rail Wuri Station. 9families, 18patients joined the trip ...

May.08, 2018

Summary of 2017 Annual Report

For the past19years, TFRD (Taiwan Foundation for Rare Disorders) contributes in the fields of policy lobbying, disease prevention and patient care for rare disease families. We are dedicated ...