News

Dec.28, 2018

SOGO Holds Christmas Party for Children

TFRD cooperates with SOGO Department Store and sends Christmas presents to the rare disease children. “Dear Xiao-jie, we don’t have to use our eyes. Let’s feel with our ...

Dec.22, 2018

Real Santa Claus Comes From Finland

Santa Claus from Finland sent gifts to rare disease children in the office of TFRD on December22th, by the contribution of Fubon Charity Foundation, Fubon Life Insurance Co., Ltd., and ...

Dec.21, 2018

Rotary Donates NT$1.1 million to EB Patients

Rotary International donated NT$1.1million to Hereditary Epidermolysis Bullosa (EB) patients via the Taiwan Foundation for Rare Disorders (TFRD) for wound dressings and special formul ...

Dec.18, 2018

The Southern Volunteer Team Wins Award Again

Volunteer service team of TFRD southern office was rewarded the High Distinction Award of hygienic health care volunteer service in Kaohsiung in2018. It was their fifth time awarded this hon ...

Dec.17, 2018

Taiwan ERT 20th Anniversary Celebration

Families have joined the TFRD in celebrating the20th anniversary of the introduction of life-saving Enzyme Replacement Therapy (ERT) into Taiwan, expressing appreciation to those who contr ...

Dec.15, 2018

2018 Patients of Moya Moya Disease Meet-up

There were17families, 34patients joining the meetup on December15, 2018. According to the survey before this reunion, we found that the patients are concerned about pre-operation caring and rehabil ...