News

Nov.11, 2018

2018 Get-together of Angelman Patients

This year, with TFRD’s arrangement, Angelman Syndrome (AS) patients’ families got together in Taichung, and had a great time in a series of sense and sensibility activities. Sin ...

Nov.03, 2018

Cross-Disease Event for Visually Impaired Patients

The Taiwan Foundation for Rare Disorders (TFRD) has held cross-disease events for three consecutive years as part of its efforts to help families with visually impaired patients share their e ...

Nov.02, 2018

Opening Press Conference of Taiwan Dravet

Opening Press Conference of Taiwan Dravet Association Parents of Dravet Syndrome patients have been working on solving their children’s problems indrug use, medication and finding medic ...

Oct.30, 2018

Thousands of People Jog for Rare Diseases

Start for Love, Let It Shine Thousands of People Jog for Rare Diseases What does it feel like when one thousand and five hundred people jog together at riverside side park? Especially thos ...

Oct.23, 2018

Respite Care Service for Patients' Families

Parents of rare disease families took part in activities in Changhua in central Taiwan on October13for experience exchanging and emotional support. At Beginning Cafe, coffee expert Lion explai ...

Oct.22, 2018

Painting Club Experience- One-day Campus Sketching

On the20th of October, dean of the NTPU College of Social Sciences, Min-Chieh Tseng, who is also the co-founder of Taiwan Foundation for Rare Disorders, conduced to an one-day campus s ...