News

Sep.20, 2018

The 7th China Rare Disease Summit

The7th China Rare Disease Summit opened in Shanghai greatly during September14-16, 2018. The summit was held by Chinese Organization for Rare Disorders (CORD) and National Children M ...

Sep.11, 2018

2018 De Lange Syndrome and BWS Reunion

The families of Cornelia de Lange Syndrome (CdLS) and Beckwith Wiedemann Syndrome (BWS), a total of33people, were invited to a reunion at Taipei Women’s Center on September9th. ...

Aug.28, 2018

Seminar for ICF certificate renewal

【Patient Activity】The2018seminar for ICF certificate renewal for rare disease patientgroups After the revision of the People withDisabilities Protection Act was implemented in2007, Taiwa ...

Aug.28, 2018

2018 Gathering of Patients with Rare Skin Diseases

The gathering not only showed the support for each other, but also made people with rare skin diseases feel stronger and powerful. A gathering for different rare skin diseases is held on August25. ...

Aug.27, 2018

The First Football Summer Camp

【Patient Activity】The first football summer camp – for victory and self-confidence! The last day of February is InternationalRare Disease Day. The year of2018happens to be the FIF ...

Aug.26, 2018

Employment resources- product marketing course

【Patient Activities】Employment resources development: product marketing course The particularity of rare diseases hassignificant negative impacts on patients’ employment and self-confidenc ...